My husband Matt and I are the proud parents of 5 beautiful children. 4 girls and one boy. Abby our oldest is 10 then there is Madison who is 7. Isabella is 5, Annie is 3 and Jakob is 1. Isabella was born with a complex heart defect known as Truncus Arteriosis. She also has a deletion on her 22nd chromosome called DiGeorge syndrome. She has a trachea and uses the ventilator at night to help her breath. She has many complex medical issues but she isnour precious little miracle. Annie was born with a mutation on her scn1a gene which and has a severe form of myoclonic epilepsy.